Flour and sugar with that?

I’m sitting here hooked up with two lines to an IV tree of three pumps, one bag of Methotrexate, a bag of saline, a bag of bicarb of soda and a bag of Zofrin antibiotics. It looks like a Christmas tree. Despite feeling a bit crappy over the weekend my blood counts stayed high and […]

Steps forward, steps back

The last couple of days have been interesting; as I’m sure will be the case throughout the treatment it’s been good news and not bad news per se, but not quite as positive as we’d like. My counts are doing well - white blood counts pretty much normal or at least neutrophils are, platelets are […]

Happy Earth Day

I know that today is all about reducing one’s carbon footprint and cutting down on global emissions and the effect that we’re having on the environment through wasteful habits and overuse of resources. While I’m all for such things I can’t help but think of Bob the Builder and that really it just comes down […]

Positivity

I’m currently at the end of stage 1b of the round 1 of chemo. Basically at this stage the chemo regime just starts killing everything - good cells, bad cells, anything that’s floating around and might get in the way of some toxic chemo chemical that’s pumped into my body. This mean that while the […]

Not cracking up, honestly

Apparently, for those of you who don’t know Ed, a little introduction is required. Ed is the DIET (Distance, Instruction, Education Technology) mascot and usually takes up residence in mine and Amberly’s office. Ed has a bit of a reputation with the ladies and is a bit of a horny, devil duckie. But he is […]

Ed usurps the blog

I spent the night watching her. It was kind of boring but she still looked really fine. But even I have my limits with a sick chick. And besides all that icky blood and bags of platelets makes my horns feel kinda funny. The nurses aren’t bad though and the doctors sure are fine, young […]

Dr.Ed and Dr.Jay


Stage 2 of 1

Started 1b of the first round of chemo today. Had the “D’ part of the Hyper-CVAD which is the steroid and the “V” which stands for Vincristine. That’s a pretty rough one - if it gets on the skin it can actually cause necrosis of the skin. Pleasant, huh? And that’s going into my body. […]

Remembering…

Because there’s so much more happening outside my little englishgirl’s world, I just wanted to take a moment to remember the victims of last year’s Virginia Tech shooting. They have a nice Remembrance website. I can’t believe it’s been a year. As part of a college community I think we were all deeply affected […]

Stay boring

I’m in the in-between days of chemo and feeling pretty good. I had a couple of days of nausea but it’s fairly low-key at the moment and the anti-nausea meds seem to keep it at bay. I’ve tried to be up and about a bit, or as much as is possible in a six by […]

No bloggage, just love


1a complete

So my first round or ‘1a’ of chemo has finished. Today it’s just the usual fluids and antibiotics. The chemo seemed to go okay, I had one morning of nausea while I was having the chemo but the nausea meds fixes that pretty easily. Yesterday was a rough day as as I had three of […]

First round

Started chemo last night. They’ve put me on a chemo regimen called Hyper-CVAD which works on some crazy 14 day cycle. So for days 1-4 I get a mix of some kind of drugs, then I get a bone marrow/cell stimulus drug on day 5. Then I get a break. Then on days 11-14 I […]

The little c

Having just done an hour or so of work and realising that life just goes on I also realise that I am feeling quite at peace. I’m not scared, I’ve been so fed up with these bloody fevers that to know they’ll finally stop is a huge relief. To know what is finally wrong with […]

The Big C

Finally, after weeks, make that months of waiting and waiting and transfusions and many drugs and hospital visits, we have an answer. I have NK & T cell Lymphoma Leukemia. Although it is very strange and bizarre to be told one has cancer, quite honestly I am just so relieved to finally know what it […]

More stuff

Another bone marrow test yesterday, third one! The doctor who did it did a great job and it really wasn’t too awful, not that I recommend for everyone to rush out and get bone marrow biopsies! Also had another CT scan and an EKG plus the usual trillion and one blood draws. With regards to […]

Massively, big, huge thank you

By the way, I just want to say a humongous thank you to everyone who has given blood recently, whether you have always given blood anyway or reading about the aplastic anemia and bone marrow disorders has prompted you to go and give blood, I just want to let you know that it truly saves […]

Back in hospital

I have quite surpassed even myself. Saturday night I had a temperature of 105 F! I don’t know that I’ve ever had such a high temperature, although I’m sure my mum could correct me on that one! I thought it was rather impressive.
So a very interesting last few days. Sunday I felt quite good. […]