Despite being able to provide blood and platelets to support my low blood counts the doctors have essentially said there is nothing that they can do to help me. This being the case the we are starting to look at different remedies and alternatives and other options for cure. I have no doubt of healing […]
Filed under: cancer, Ed, T-cell Lymphoma on July 22nd, 2008 | 5 Comments »
Typed by Keith, dictated by Mélaine
Hey who needs a spleen after all? After my last post, my spleen was causing me much distress and a lot of pain and getting quite enlarged. So the doctors decided to perform a splenectomy on Friday. This went remarkably well as my spleen was the size of my liver […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on July 17th, 2008 | 7 Comments »
So much for that plan! Those few days out of the hospital will have to wait. Around the same time that they started me back on Neuprogen, they also decided to taper me off the steroids. As the days have gone on my fevers are getting worse (104 today) and last night I experienced the […]
Filed under: cancer, T-cell Lymphoma on July 7th, 2008 | 2 Comments »
Still in the hospital, still waiting for my counts to start coming back up, in particular the white counts and the neutrophils. The docs also started me on Neuprogen yesterday. Neuprogen is the bone marrow stimulant that is given on a daily basis. Neulasta is the two week stimulant which I reacted to quite spectacularly […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on July 4th, 2008 | No Comments »
So I have to say that having one’s brother donate Bone Marrow in order to save one’s life is a pretty amazing thing. As things are getting closer for the transplant and now that Luc is here, I’m starting to see what an incredible experience this is. What’s incredible is that the doctors can take […]
Filed under: cancer, T-cell Lymphoma, BMT on June 30th, 2008 | 5 Comments »
Twists and turns all the way. I’ve just finished another session of the McGrath Chemo regime. I enjoyed some lovely time at home, catching up on work, spending time with my little bean and loving being at home with my family. Unfortunately my lymph nodes and fevers thought the time at home was lovely too […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on June 29th, 2008 | 2 Comments »
It’s crazy how this disease has a mind of its own. Every time I think I can plan and organise, the powers that be say, “Girl, let it go. This is not in your hands.” While I know I have the power to aid in my healing through positive mental attitude and a good diet, […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on June 19th, 2008 | 5 Comments »
I’m still at home! It is so amazing. I have a whole new appreciation for my home and my garden and being with my family and simply enjoying what’s around me.
I was supposed to head back to Cleveland last week but my counts, particularly platelets were still too low to continue with further chemo […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on June 12th, 2008 | 2 Comments »
Well, would you believe it? After almost two and half months away I am back in Fort Wayne, enjoying my beautiful garden and seeing my neighbours; catching up with Bob and being able to work at least in the same town; eating good, home-cooked food and reading my little boy bedtime stories. It is truly […]
Filed under: indiana, bone marrow disorder, cancer, T-cell Lymphoma on June 5th, 2008 | 5 Comments »
I successfully completed part a of my second round of chemo. I came out of hospital on Tuesday morning, feeling a little jelly-legged and like I had spent the last five days hooked up to an IV pumping toxic chemicals into my bodies, but overall feeling pretty good. K was with me and it was […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on May 29th, 2008 | No Comments »
How cool is this?
So Keith went out to our local Chinese for lunch on Wednesday and at the end of the meal got his fortune cookie. He thought it was a cool and appropriate for our situation message so he sent me a photo.
It’s hard to read but it says, “Use your abilities at […]
Filed under: famille et amis, cancer, T-cell Lymphoma, random coolness on May 22nd, 2008 | 2 Comments »
It looks like we’re moving forward with round 2 of the chemo. I had an appointment with Dr.S yesterday and again Hgb and white cells were doing well and happily my platelets had gone up up to 46! Now I did have a transfusion on Friday but that means that if nothing else they […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on May 20th, 2008 | 1 Comment »
Having thoroughly been dosed up on Benadryl, steroids, morphine and goodness knows what else, I have finally been released from the dreaded hospital bed back to the Lodge, after the doctors confirmed that the hive reaction was due to one of my antibiotics and neither the lymphoma, (which can apparently sometimes manifest itself through the […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on May 16th, 2008 | 3 Comments »
Itch..scratch, scratch, scratch…itch…itch…scratch…this has been my body for the last four days. Friday I had a platelet transfusion which was fine. I then had a blood transfusion and about ten minutes away from finishing my second unit of blood, I felt like what I thought what an insect bite on my face. Over the next […]
Filed under: cancer, T-cell Lymphoma on May 13th, 2008 | 4 Comments »
Finally, I’ve finished my grading for Educ.205 and have submitted the students’ final grades…only four days late! Unfortunately it’s been one of those weeks where I’ve been in and out of hospital so much for transfusions and labs that trying to get through their final projects has been quite a task. Still it’s done now, […]
Filed under: educ 205, cancer, T-cell Lymphoma on May 9th, 2008 | 2 Comments »
The Methotrexate kicked my butt. I spent a day in la-la land and spent the following day having to be reminded of everything I said or that occurred the previous day. I am now officially finished with round 1 of the Hyper C-VAD chemotherapy regime. I’m back to the waiting stage as we watch my […]
Filed under: cancer, T-cell Lymphoma on May 4th, 2008 | No Comments »
I’m sitting here hooked up with two lines to an IV tree of three pumps, one bag of Methotrexate, a bag of saline, a bag of bicarb of soda and a bag of Zofrin antibiotics. It looks like a Christmas tree. Despite feeling a bit crappy over the weekend my blood counts stayed high and […]
Filed under: cancer, T-cell Lymphoma on April 28th, 2008 | 2 Comments »
The last couple of days have been interesting; as I’m sure will be the case throughout the treatment it’s been good news and not bad news per se, but not quite as positive as we’d like. My counts are doing well - white blood counts pretty much normal or at least neutrophils are, platelets are […]
Filed under: cancer, T-cell Lymphoma on April 24th, 2008 | 5 Comments »
I’m currently at the end of stage 1b of the round 1 of chemo. Basically at this stage the chemo regime just starts killing everything - good cells, bad cells, anything that’s floating around and might get in the way of some toxic chemo chemical that’s pumped into my body. This mean that while the […]
Filed under: cancer, T-cell Lymphoma on April 21st, 2008 | 1 Comment »
Started 1b of the first round of chemo today. Had the “D’ part of the Hyper-CVAD which is the steroid and the “V” which stands for Vincristine. That’s a pretty rough one - if it gets on the skin it can actually cause necrosis of the skin. Pleasant, huh? And that’s going into my body. […]
Filed under: cancer, T-cell Lymphoma on April 18th, 2008 | 3 Comments »
I’m in the in-between days of chemo and feeling pretty good. I had a couple of days of nausea but it’s fairly low-key at the moment and the anti-nausea meds seem to keep it at bay. I’ve tried to be up and about a bit, or as much as is possible in a six by […]
Filed under: cancer, T-cell Lymphoma on April 16th, 2008 | 2 Comments »
Filed under: famille et amis, cancer, T-cell Lymphoma on April 13th, 2008 | No Comments »
So my first round or ‘1a’ of chemo has finished. Today it’s just the usual fluids and antibiotics. The chemo seemed to go okay, I had one morning of nausea while I was having the chemo but the nausea meds fixes that pretty easily. Yesterday was a rough day as as I had three of […]
Filed under: cancer, T-cell Lymphoma on April 12th, 2008 | 6 Comments »
Started chemo last night. They’ve put me on a chemo regimen called Hyper-CVAD which works on some crazy 14 day cycle. So for days 1-4 I get a mix of some kind of drugs, then I get a bone marrow/cell stimulus drug on day 5. Then I get a break. Then on days 11-14 I […]
Filed under: cancer, T-cell Lymphoma on April 9th, 2008 | 6 Comments »
Having just done an hour or so of work and realising that life just goes on I also realise that I am feeling quite at peace. I’m not scared, I’ve been so fed up with these bloody fevers that to know they’ll finally stop is a huge relief. To know what is finally wrong with […]
Filed under: cancer, T-cell Lymphoma on April 8th, 2008 | 4 Comments »
