Typed by Keith, dictated by Mélaine
Hey who needs a spleen after all? After my last post, my spleen was causing me much distress and a lot of pain and getting quite enlarged. So the doctors decided to perform a splenectomy on Friday. This went remarkably well as my spleen was the size of my liver […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on July 17th, 2008 | 7 Comments »
Still in the hospital, still waiting for my counts to start coming back up, in particular the white counts and the neutrophils. The docs also started me on Neuprogen yesterday. Neuprogen is the bone marrow stimulant that is given on a daily basis. Neulasta is the two week stimulant which I reacted to quite spectacularly […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on July 4th, 2008 | No Comments »
Twists and turns all the way. I’ve just finished another session of the McGrath Chemo regime. I enjoyed some lovely time at home, catching up on work, spending time with my little bean and loving being at home with my family. Unfortunately my lymph nodes and fevers thought the time at home was lovely too […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on June 29th, 2008 | 2 Comments »
It’s crazy how this disease has a mind of its own. Every time I think I can plan and organise, the powers that be say, “Girl, let it go. This is not in your hands.” While I know I have the power to aid in my healing through positive mental attitude and a good diet, […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on June 19th, 2008 | 5 Comments »
I’m still at home! It is so amazing. I have a whole new appreciation for my home and my garden and being with my family and simply enjoying what’s around me.
I was supposed to head back to Cleveland last week but my counts, particularly platelets were still too low to continue with further chemo […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on June 12th, 2008 | 2 Comments »
Well, would you believe it? After almost two and half months away I am back in Fort Wayne, enjoying my beautiful garden and seeing my neighbours; catching up with Bob and being able to work at least in the same town; eating good, home-cooked food and reading my little boy bedtime stories. It is truly […]
Filed under: indiana, bone marrow disorder, cancer, T-cell Lymphoma on June 5th, 2008 | 5 Comments »
I successfully completed part a of my second round of chemo. I came out of hospital on Tuesday morning, feeling a little jelly-legged and like I had spent the last five days hooked up to an IV pumping toxic chemicals into my bodies, but overall feeling pretty good. K was with me and it was […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on May 29th, 2008 | No Comments »
It looks like we’re moving forward with round 2 of the chemo. I had an appointment with Dr.S yesterday and again Hgb and white cells were doing well and happily my platelets had gone up up to 46! Now I did have a transfusion on Friday but that means that if nothing else they […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on May 20th, 2008 | 1 Comment »
Having thoroughly been dosed up on Benadryl, steroids, morphine and goodness knows what else, I have finally been released from the dreaded hospital bed back to the Lodge, after the doctors confirmed that the hive reaction was due to one of my antibiotics and neither the lymphoma, (which can apparently sometimes manifest itself through the […]
Filed under: bone marrow disorder, cancer, T-cell Lymphoma on May 16th, 2008 | 3 Comments »
Another bone marrow test yesterday, third one! The doctor who did it did a great job and it really wasn’t too awful, not that I recommend for everyone to rush out and get bone marrow biopsies! Also had another CT scan and an EKG plus the usual trillion and one blood draws. With regards to […]
Filed under: bone marrow disorder on April 4th, 2008 | 1 Comment »
By the way, I just want to say a humongous thank you to everyone who has given blood recently, whether you have always given blood anyway or reading about the aplastic anemia and bone marrow disorders has prompted you to go and give blood, I just want to let you know that it truly saves […]
Filed under: aplastic anemia, bone marrow disorder on April 3rd, 2008 | 1 Comment »
I have quite surpassed even myself. Saturday night I had a temperature of 105 F! I don’t know that I’ve ever had such a high temperature, although I’m sure my mum could correct me on that one! I thought it was rather impressive.
So a very interesting last few days. Sunday I felt quite good. […]
Filed under: bone marrow disorder on April 3rd, 2008 | 3 Comments »
Sunday night we told Jay we were going on a trip. One that involved a four hour car journey there and back. For Jay, usually a long car journey means Chicago and the museums or going to stay with Mamie and Grandpa Jerry. He was extremely unimpressed when he realised that Monday’s trip involved four […]
Filed under: health, aplastic anemia, bone marrow disorder on March 12th, 2008 | No Comments »
Yet another piece of Fort Wayne culture and history slipping away. Nancy wrote a good post about it and said everything I would wish to say, only much better and more succinctly. As previous owner of my house I keep hoping remnants of her ghost will infuse in me the skill and natural ability to […]
Filed under: indiana, health, aplastic anemia, bone marrow disorder on March 6th, 2008 | 1 Comment »
My blog may start to become a little bit medical over the next few posts, mainly because my recovery process is not going quite as we had expected. Infectious Diseases are still running tests on all my blood smears, etc but still have no answer or diagnosis as to what caused this. And as we’ve […]
Filed under: health, aplastic anemia, bone marrow disorder on March 2nd, 2008 | 2 Comments »
I’m not going to write too much right now, I really just wanted to post some photos from Jay’s 4th birthday party for the grandfolks.
mvi_1290.AVI
It has been quite a surreal couple of weeks. After three weeks of feeling utterly exhausted, as in I’d climb a flight of stairs, have to stop and catch my […]
Filed under: famille et amis, health, aplastic anemia, bone marrow disorder on February 19th, 2008 | No Comments »
